Daily Archives September 12, 2012

Good News, Bad News, Strange News

It’s a big long medical jargon phrase. Ready for it? Here goes: Chronic thromboembolic pulmonary hypertension

See, for the past year, we thought I had pulmonary hypertension. Some thought it might be pulmonary arterial hypertension, others thought just pulmonary hypertension, but nobody ever said the words Chronic thromboembolic pulmonary hypertension to me, or what is more commonly known as CTEPH. But it makes sense now that we’re getting to the bottom of what’s going on with me.

CTEPH is caused by a chronic thromboembolic disease, which basically is a fancy way of saying that someone has recurrent blood clots, usually from deep vein thrombisis–that means the clots move from the big veins, most often found in the legs or abdomen. These blood clots are usually caused by a medical condition, genetic disorder, and sometimes, though rarely, for no reason that anyone can ever find. For me, it’s likely from a chronic, undiagnoised inflammatory condition, auto-immune, and it’s looking more and more like my diagnoses from over seven years ago of Lupus was actually probably accurate. I am likely a serum negative lupus patient, and that would explain the inflammation, the immune issues, the pain, the butterfly rash everyone sees and comments on–but my ANAs are all negative. We are finding that from kidney issues to the blood clots, I’m having all the classic lupus complications, so really, at this point, ANAs seem a bit… well, useless.

Regardless, the blood clots traveled, unbeknownst to ...

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quick scam warning for Poetry.com

They’re at it again… read more here:


And here:



And my blog post earlier this year about it here: http://michelleldevon.com/2012/03/28/must-read-warning-for-everyone-who-writes-poetry/


Please don’t fall victim to this scamming site. Read the email they sent me today by downloading the PDF copy of it here.



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